The Black Long Covid Experience
Empowering Black Americans
Affected with Long Covid.
Happy Black History Month!
Update: The Black and Living Side of Chronic Illness,
A List of Black People We All Should Know in the Chronic Illness Community
Let’s Play
Black Long Covid BINGO!
Everyone Can Play!
Play for a Chance to Win $50!
And Support A Community Member Living with a Disability and Chronic Illness!
We are
Black History!
This Year, We are Focused on:
Visibility
Validity
Community
“We May be Quiet but We Sure AIN’T Absent!”
It is time that Black culture, achievement, and community are acknowledged in the Long Covid Movement.
Let’s tell your individual and collective story by submitting a photo and information here.
In this video, Chimére, a Black woman, wearing a cream/beige winter hat, gray-rimmed glasses, and a sky blue athleisure jacket.
She is expressing her excitement about being featured in Dr. Emily Mendenhall’s newest book, Invisible Illness: A History, from Hysteria to Long Covid.
Invisible Illness
The Newly-Released Book Calls Chimere a “tour de force” in the Long Covid Advocacy Community!
Get You Some Clarity about Owning Your Blackness in Long Covid and ME/CFS Organizations!
If you’re Black, have received donation requests from Long Covid and ME/CFS organizations, and are considering hitting the donation button, now is the time to ask yourself:
Do I feel truly represented by this organization on their websites, informationals, etc.?
Are there Black board members, division leaders, and staff that have been given a voice and power to lead campaigns and events — not just one person but at least two or more?
Have I been personally invited to join their organizations by various methods of communication (i.e. emails, social media, etc.)?
Am I able to safely integrate into these organizations with their acknowledgment of Black heritage, history, and culture in relationship to science and medicine?
Can I rely on these organizations to accommodate my one-time financial support request to purchase medications or essential items?
Are my skills and talents being utilized in a diversity-conscious and healthy manner? Or am I just serving in an empty role to fill a race and ethnicity requirement?
What are the organizations’ responses when I inquire about the inclusion (or exclusion) of Black participants in Long Covid and ME/CFS meetings and events?
Photo Courtesy: Chimére is advising Black people living with Long Covid to consider if Long Covid and/or ME/CFS organizations are invested in Blackness before they contribute to their donation fundraisers.
A Great Look: NBC NEWS NOW
Showcased the
Black Long Covid Experience!
Long Covid…
FIVE YEARS LATER.
Watch
Chimére on
NBC News NOW on Hallie Jackson NOW.
Photo Courtesy: miodrag ignjatovic, 2025
A health professional is filling out paperwork for a patient with red nails who is submitting a health insurance card.
Call Your City Council, Congressional, and Senate Leaders to Ask Them to Consider What Will Happen if You are Unable to Access Healthcare and/or Disability Benefits.
Impulsive, Uncontrollable Outbursts are REAL!
Long Covid causes brain damage or #neurospicy behavior that may be similar to having a stroke or a traumatic brain injury (TBI). It may change the composition of the brain.
When this happens, we can experience impulsive, uncontrollable emotional and verbal outbursts.
While neurospicy is a trendy name and label, it is so important that Black people with Long Covid seek mental health support from a professional who treats patients with brain damage and psychological issues due to a viral condition, like Long Covid.
Photo Courtesy: Chimére L. Sweeney, 2024
Chimére, Director of The Black Long Covid Experience, shares examples of her neurospicy brain damage from her Covid-19 infection in March 2020 that causes her verbal outbursts
She is a Black woman with a faded short haircut with a dark pink tank top and brown-rimmed glasses.
Introducing Long Covid Posties —
Postcards to Send to Your Long Covid Tribe!
“This is our national truth: America would not be America without the wealth from Black labor, without Black striving, Black ingenuity, Black resistance.”
Photo Courtesy: LaylaBird, 2020
A Black woman with a white sweater and a black and orange head wrap. She is smiling with her hands clasp together to signal joy or happiness in front of a laptop .
It’s About Time!
Welcome to The Black Long Covid Experience (or BLCE): a trusted space offering Long Covid information, resources, and support for you and your loved ones.
We are also a compassionate consulting business dedicated to educating the public on the implications of Black Americans with Long Covid and empowering Black communities to advocate for consistent health outcomes.
Photo Courtesy: Washington Post Live, 2024
Chimére is a Black woman wearing a black face mask, denim light blue dress with a gold necklace and short haircut, sitting in the middle between another Black woman and Latina woman.
Trusted. Consistent. Competent.
As a disabled activist and Director of The Black Long Covid Experience, Chimére L. Sweeney draws from her own journey with Long Covid, advocating for equitable medical care and policy change. As a retired Maryland teacher, she deeply connects with Black urban communities and understands their distinct health needs.
Photo Courtesy of Niphon, 2021
Description: a white Long Covid sign with the
light teal Covid-19 graphic and an iridescent background.
Comprehensive Education that Will Help Define Long Covid for Black Communities.
We believe the first step to receiving comprehensive Long Covid care is collaborating to help you define the condition for yourself —and share that understanding with those you care about. Once you grasp how it affects you, you'll be empowered to advocate for and access the right medical care.
Photo Courtesy, SDI Productions, 2020
A masked Black adult male aids a Black young boy in putting on his mask.
Support for Communities.
Long Covid can be frustrating and lonely. At BLCE, we are committed to planning virtual events that are inclusive, educational, and honor your experiences and time. Our goal is to provide pathways to friendships, income, and comprehensive medical care
We Would Love to Hear from You!
Say hello. Or book us for a service or educational course.
We’re here for you.
Please allow 24-48 hours to receive a response.
